All I Want For Christmas…

All I want for Christmas is….

Hope for my child.
I don’t dream of her walking.
I don’t wish that she could climb a tree.
Those things are lovely, but we could manage life in a powerchair…
and I know my little fighter would rise to the challenge with a smile.
No, my wildest dreams are simple.
I wish my daughter could breathe.
I wish she could swallow.
I wish she could grow up…survive.
I wish the world knew about SMA
because I know if they knew the sweet babies it takes,
the smart children it cripples,
the future it snuffs out so prematurely –
if people knew about SMA
I know they would push for a cure.
I know they would donate to research.
I know they would sign the petition.
I know they would scream from the mountain tops:
“SMA is KILLING our children!!!”
A cure is so close.
Research is so promising.
I just hope it is in time for my baby.

About Victoria
Mom fighting to END SMA, the #1 genetic killer of young children.

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