All I want for Christmas is....
Hope for my child.
I don’t dream of her walking.
I don’t wish that she could climb a tree.
Those things are lovely, but we could manage life in a powerchair...
and I know my little fighter would rise to the challenge with a smile.
No, my wildest dreams are simple.
I wish my daughter could breathe.
I wish she could swallow.
I wish she could grow up...survive.
I wish the world knew about SMA
because I know if they knew the sweet babies it takes,
the smart children it cripples,
the future it snuffs out so prematurely --
if people knew about SMA
I know they would push for a cure.
I know they would donate to research.
I know they would sign the petition.
I know they would scream from the mountain tops:
"SMA is KILLING our children!!!"
A cure is so close.
Research is so promising.
I just hope it is in time for my baby.
December 13, 2009
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14 comments:
beautiful!! XOXO
wonderfully stated! I pray for those things everyday, and you are by far the best advocate for Miss Gwendolyn! A cure will BE!!!!
be well,
Lisa :)
We pray you get all you want for Christmas and more. Thank you for your continued commitment to finding a cure for SMA. You are inspirational.
I found your link on facebook and am amazed at the strides you're taking to end SMA. Keep up the fight! You are doing an incredible job for all the angels on earth, that are affected by this disease. A cure can and will be found. I wish you and your family a healthy Christmas. I think you are headed toward your dream. I know a little angel with SMA, and have felt so helpless till I found this link. I will keep voting and tell others to do so as well. MANY THANKS!!!!!!
This is worded so perfectly. Can I share it on our blog?
Praying for a cure...FAST!!
Ashley
I cant even put think of how to word it any better. It is amazing the things we take for granted, like breathing!! I am so glad to have you guys in our lives and thank you so much for the love and suppot while we were in the hospital and always.
I pray every day for a cure in time -- as do so many others who love and cherish Gwendolyn and all the other beautiful children with SMA. You and Bill are doing so much to make a cure come sooner, and to give inspiration and hope to others. Keep fighting because you're making such a difference and bringing so many people with you. Love Love Love xxx
My prayers are that your Christmas wishes come true.
Blessings and lots of love, Mari
I want your wishes to come true....a cure MUST be close around the corner!
I hope and wish and pray,so very desperately, for the same ...for you my sweet dear friend.For you Bill,the most amazing dad and most especially for Gwendolyn,who deserves all of this and so much more.Love to you all.
You're not alone. I think that's all anyone who has met Gwendolyn wants for Christmas too. xoxo.
Crossing our fingers and toes and holding our breath. Let's go Dr. Keirstead!!!!
Beautifully written.
Beautifully written, although something I too hope no other parents have to hope for in the very near future!! A cure is on all our Christmas lists this year and we will continue fighting, raising money and spreading the word about SMA as much as we can.
All the best to you, Bill and sweet Gwendolyn this holiday season!! Em
'All I want for Christmas is for U and Bill and 'lil Princess Gwendolyn to be happy' U all look so happy in the posts but I have to remember that life is in progress......we all progress in our own special way.....and time.....and fashion......I love your posts No Matter what they say
It is all 'music to my ears' And all I want for Christmas is the same that U want.....exactly the same
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